Feb 9, 2010

Because so many people still don't even know what it is

I think most of you who read my blog are familiar with our niece and nephew Patrice and Matt and their son Jonah, who suffers from EB. As a matter of fact, it's not just Jonah who suffers from EB ... it's Matt and Patrice and everyone who loves the three of them.

Jonah fights the physical fight every day while Matt and Patrice fight the emotional one. Jonah shines his light into their world while EB tries to shroud them in darkness. (Please pray for Patrice's ongoing funk. She needs to see The Light every day. It's what keeps her going.)

And it won't be long before Jonah will be fighting the emotional fight in ADDITION to the physical one. It won't be long before Matt and Patrice will be able to verbally explain to him why his body is rebelling against him and why rude people stare at him in public.

It's not fair. IT'S NOT FAIR.




So I can't think of a better cause to support than the Fight Against EB. I know we're all stretched too thin, that most of us live paycheck to paycheck, that some of us are out of work or might be this time next month.

But if you have any money to spare, any Starbucks to skip, any meals you could take to work instead of eating out, any cute dress with the tags on it that you can return, if you have any of that ... please consider bidding on an item in Jonah's EB Auction in honor of his first birthday.

The auction will open at 12:01 a.m. EST on Feb. 23 and run until 11:59 p.m. on Feb. 27. You will have the opportunity to place bids on almost 100 different items -- from gift cards to jewelry to custom items and everything in between. Proceeds will go to DebRA to help fund a cure for Jonah and Tripp and all of the other EB babies.

Thank you for opening your hearts to our families!


Sarah T. said...

Totally! I read Patrice's blog today and I wanted to punch out that bitch at Target. And I'm a pacifist!

Help the fight against EB! said...

The best part is that you don't really even have to have money to spend! If you've got money for grocery shopping or gas, bid on a gift card for Harris Teeter, BP, Walmart, Target, etc and get your money right back!!

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